The Life of August Miles

3-hour hearing test

January 29th, 2009 by Administrator

Janet and I are at the hospital while August undergoes a three hour hearing test. The test is to try and narrow down where his hearing loss is located. Depending on the results this impairment might be correctable.

Unfortunately, he has to be sedated for this test. On the plus side, Janet was able to replace his “button” while he was asleep, before they did the hearing test. His button is the tube into his stomach through which he is fed. Janet did it very smoothly, having seen it done a couple times before, and the nurses all complimented her.

She left a couple minutes ago to go to Porter’s school for a special presentation. Porter has been helping to build a Yellow Submarine at his school and they’ve created lots of learning activities around it. After showing Janet what his been doing they’ll come back to hospital to pick August and I up.

August has been doing well lately, despite a cold. He’s been crawling around and has braces to support his ankles to help him learn to walk. He pulls himself up on us and furniture and has even made it up a couple of steps.

He’s been nibbling on some food but progress has been slow for learning to eat. His favorite thing to eat are cheese puffs.

Janet, Porter, and I have been learning and using sign language, and August really likes it when we sign. He has learned the sign for “more”, which he does to us, but where not sure he knows what it means.

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August’s daily meal

January 29th, 2009 by Administrator

August is doing well these days. He is currently 18 pounds and is crawling around, pulling himself up on things. He has been fitted for orthepedic inserts which will help him as he learns to walk. We also have a small walker which he slowly pushes around.
He is also very communicative making lots of screeches, clicks, kissing, and mama sounds.

Below is a record of August’s current meal recipe.

Base Recipe makes 750 mls:
14 oz. milk (pref. unpasturized goat milk)
2 Tbl. oatmeal or rice cereal
3 oz. vegetable (raw or uncooked)
4 oz. fruit or fruit juice (non-acidic)
1/4 tsp. salt
4 Tbl. oil or butter
2 oz. protein (meat, egg, 1/4 cup cottage cheese, 1/2 cup lentils)
4 Tbl. molasses
Add coconut water, milk, water or tea if necessary to make 900 ml total

Mix ingredients with flax and harder substances at the bottom of the blender.
Liquify ingredients.
Warm and load into pump.
Yum.

Current vitamins per day:
1 drop vitamin K
1 tsp. multi-vitamin syrup
Current meds per day:
2 ml. zantac
2 tsp. enulose syrup

His meal schedule and rate:
160 ml at 81 ml/hr, twice a day with a least a couple hours in between
600 ml at 65 ml/hr, overnight

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