Same Same But Different

Went to see Dr. Milczuk today at OHSU.  He’s the ENT doc who found the cleft palate and put in August’s last set of ear tubes.  Last month he said that the tubes had come out and that his eardrums looked thick, which could mean fluid in the ear, which could mean another set of tubes going in.  We found out today that both ears have fluid and he will in fact need another surgery to get tubes put in.  Don’t know what other procedures are on the horizon, but in my typical form, I will try to get multiple procedures, as well as a bunch of blood work done at the same time to minimize the number of times he has to go under.

August turned three recently and I have been thinking about the day he was born.  It was sunny and warm and beautiful in Portland, just like it was this year.   Three years ago we spent his first 41 days of life in the NICU.  August came home on the first day of spring with a G-tube, 6 prescription medicines, bags of syringes and tubes, bottles, nipples and a freezer full of breast milk.  I can’t believe that he still has his G-tube three years later, but I guess once I accepted it, I’ve always thought he would be three when he got rid of it.  So here we are…facing another day of surgery and many more nights of tube feedings and little sleep, another shipment of feeding supplies, another meal not eaten (or eaten and spit out).  But I will not go another year without intensive intervention to get this kid to eat.

Can’t wait to see what his 4th birthday is like!